wow right on the money haha! i still have strong intuition i see, great!, either that or we're twins in another life... they didn't find my lesion for years either, many mri's eeg's catscan yada yada. seven radiologists missed it between 2004 and 2011, then a new (one from a way bigger hospital) came to do some work here, and bang... you have a lesion.
after one of my worst tonic clonics (physically
and mentally, and first one i'd had alone) i went for tests and she found it right away. i cried for months (always had an arachnoid cyst as well which they said wasn't the issue), so when i learned it was two things in my head and intractable epilepsy, well, *shudder* in one phone call i became a woman who had to face brain surgery. emotionally thought i'd die.
i found out earlier this year from last year's eeg unit (was in 17 days) that the lesion began in my mom's womb, and i got very lucky not having seizures until i was 15. to be 34 and learn your heads been f'd since before you were born... eye opening to say the least
SO GOOD to hear all your regular daily stuff feels normal, sleeping eating etc. and that you have lots of help! that is so relieving! trust me (others on here as well) we feel we went through it alone, so HUGS to anyone who has lots of support, lots of hugs going around where you are too i bet.
so the 'small part of the temporal lobe as well' they removed, which part was it? the amygdala is in the temporal lobe, just very deep, so my guess is same as me... the hippocampus? should say the specific surg name on your discharge papers if they didn't already tell you.
as for memory, it has only been two weeks my dear, throw that worry away. memory issues are part and parcel of brain surgery, pretty much everyone deals with it, whether it's only for a month or lasts for years. what type of surg you had and reason behind it plays a big part too. if you can't remember someone's name etc., remind yourself "i just had brain surgery. will be recovering for months. i'm doing my part by looking after myself every day and having hope for the future. today i'm at *enter here* days seizure-free and i'm making it!"
sitting at home is what it is, i lost my license 7 times prior to the surg, so though it feels you're being held hostage some days, you'll get through it. this is a once in a lifetime (for most) experience friend, take it all in, even being low on energy and stuck in the house. these are safe, inside, warm, and i can't add the amount of times i've been told (from friends to family to my epilepsy nurse) TAKE IT EASY. RELAX. DON'T OVERDO IT OR YOU'LL PAY FOR IT (omg that is
still true for me jim, at two weeks it's demanded that you don't do much, so sit on your ass!!! movies, play cards etc.).
i started cleaning house after a month, going for short walks to get the mail around the two month mark (outside and alone), and now have 'most' of my energy back, but, same as before, if i push it... woooh, not fun. we deserve to feel this way... agreed to have parts of our brain removed to save/improve our life. HUGS.
fft: