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hi friends 
http://www.coping-with-epilepsy.com/forums/f41/its-been-6-months-im-leaving-10-hours-22824/ (just the background so i don't blab on too much here!).
safe to say february 12th was one of the most unforgettable days that will ever happen in my life. my hopes/ideas were getting the mri over with first thing (very hopeful and positive it would come out clear), then spending much time meeting with the whole e-team, had hugs and tears and thank-you cards all ready to go.
the mri was the worst i've ever experienced (believe it was my 10th). they've never bothered me, don't mind having my head in there and listening to all the racquet. at first i was okay then my brain went something along the lines of 'what? what the hell are we doing in this contraption again? get us out of here!'
was anxious, hands were numb, and as familiarity has always been a massive seizure trigger for me, old memories set in fast when i started recognizing certain rhythms and knocking. then a sequence would happen i'd never heard, and instantly relaxed. then a familiar one again, on and on. with about 15 minutes left i started feeling a very pre-seizure feeling, like a simple may just hit any second. but thanks to my new brain and me refusing to give in to an old feeling, it all came out fine. no seizure, just a level of anxiety i've never felt in there before. grrrr.
the after-effects emotionally made me go back to the hotel rather than meet up right away, needed a long shower and a good cry.
after that the day turned into the most fabulous. many (good) tears, and so much support. looked at the mri and it's clean as a whistle, lesion is ALL GONE! without another seizure i will never have another mri, and i was given the ok to drive again. WAS SO AWESOME!!!
seeing and hugging the surgeon who saved my life was overwhelming to say the least, and i'm so excited to go and do it again on my 1-year follow-up august 6th! 1-year-seizure-free is august 4th so it's pretty clear what a great trip to van this will be!
he sent a pre- and post-op pic a few days ago so i've attached... right side of the pic is the left side of my head). hole is about the size of a toonie, surprised me. but personally i wouldn't care if it was three times that if it still meant i was seizure-free.
hugs to you friends, and thanks for being there.
:woot:
http://www.coping-with-epilepsy.com/forums/f41/its-been-6-months-im-leaving-10-hours-22824/ (just the background so i don't blab on too much here!).
safe to say february 12th was one of the most unforgettable days that will ever happen in my life. my hopes/ideas were getting the mri over with first thing (very hopeful and positive it would come out clear), then spending much time meeting with the whole e-team, had hugs and tears and thank-you cards all ready to go.
the mri was the worst i've ever experienced (believe it was my 10th). they've never bothered me, don't mind having my head in there and listening to all the racquet. at first i was okay then my brain went something along the lines of 'what? what the hell are we doing in this contraption again? get us out of here!'was anxious, hands were numb, and as familiarity has always been a massive seizure trigger for me, old memories set in fast when i started recognizing certain rhythms and knocking. then a sequence would happen i'd never heard, and instantly relaxed. then a familiar one again, on and on. with about 15 minutes left i started feeling a very pre-seizure feeling, like a simple may just hit any second. but thanks to my new brain and me refusing to give in to an old feeling, it all came out fine. no seizure, just a level of anxiety i've never felt in there before. grrrr.
the after-effects emotionally made me go back to the hotel rather than meet up right away, needed a long shower and a good cry.
after that the day turned into the most fabulous. many (good) tears, and so much support. looked at the mri and it's clean as a whistle, lesion is ALL GONE! without another seizure i will never have another mri, and i was given the ok to drive again. WAS SO AWESOME!!!
seeing and hugging the surgeon who saved my life was overwhelming to say the least, and i'm so excited to go and do it again on my 1-year follow-up august 6th! 1-year-seizure-free is august 4th so it's pretty clear what a great trip to van this will be!
he sent a pre- and post-op pic a few days ago so i've attached... right side of the pic is the left side of my head). hole is about the size of a toonie, surprised me. but personally i wouldn't care if it was three times that if it still meant i was seizure-free.
hugs to you friends, and thanks for being there.
:woot:
Last edited:
fft:
But I always enjoy Listening to Earth,Wind, & Fire in my car. They are unabashedly upbeat and always make me feel happy.