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Well,
I have taken a wile to figure out how I was going to go about posting this thred.
My daughter's name is Isabella, she is now turning 6 at the end of this month. At the age of 2 1/2 She was completly normal. Behavior, speech, potty training every thing normal. She is the second of 3 atthe time (4 in total)
In the care of my mother-in-law she suffered a near drowning. It is unknown how long she was out. Her heart had stopped, and was subsiquently revived by CPR.
Within days of the event she started peeing her pants at night and during the day (we chalked it up to stress). Slurring words, stumbling, falling, forgetting things, not "listening".
Within 2 months we started seeing absance siezures (staring spells) that lasted 30 seconds-2 minutes. on average 20 an hour. She was classified as "un-diagnosed" Siezure disorder.
It has gotten progressively worse since. She had no sense of time, word recall problems, severe behavior issues, and was unable to complete extended requested tasks (like go up stairs, get jammies on, brush teeth and go to bed).
She progressed to have Complex-Partial siezures that always effected only her left side. Walking in circles, falling to the left, Left eye going "Squirly", drooping facial expressions, left arm spazams, listing to the left and more.
She also has Atonic-Clonic (im not sure on the spelling or if the name is right) siezures where she would drop un-concious. They ranged from 5 seconds to 3 minutes. They would also cause her to pee randomly.
She has classic abcance siezures including drooling, and eyes fluttering/rolling up and to the left.
She also has Clonic-tonic (Grand mal's?) that usually last 2-3 miuntes.
Here is the kicker. She is greatly effected by her discharges and the subsiquent siezures. The worst eeg they recorded 156 discharges/siezures in one hour. That included over 50 siezures proper that lasted 3 second to 2 minutes.
We have gone throught a wide specturm of medications all offered some control. But we have never had all 4 types of siezures controled at the same time. It has now coming up on 3 years since the accident. It is unclear wether it's the cause or not.
We are awaiting the response to the testing for Ring chromosome 27 (i think that's what it's called) ---the genetic testing.
They have been unable to locate any brain damage by mri or ct.
There you have it. I think the most important thing here is the effect that it has had on our family. I will get into that shortly. For now im out of time.
I have taken a wile to figure out how I was going to go about posting this thred.
My daughter's name is Isabella, she is now turning 6 at the end of this month. At the age of 2 1/2 She was completly normal. Behavior, speech, potty training every thing normal. She is the second of 3 atthe time (4 in total)
In the care of my mother-in-law she suffered a near drowning. It is unknown how long she was out. Her heart had stopped, and was subsiquently revived by CPR.
Within days of the event she started peeing her pants at night and during the day (we chalked it up to stress). Slurring words, stumbling, falling, forgetting things, not "listening".
Within 2 months we started seeing absance siezures (staring spells) that lasted 30 seconds-2 minutes. on average 20 an hour. She was classified as "un-diagnosed" Siezure disorder.
It has gotten progressively worse since. She had no sense of time, word recall problems, severe behavior issues, and was unable to complete extended requested tasks (like go up stairs, get jammies on, brush teeth and go to bed).
She progressed to have Complex-Partial siezures that always effected only her left side. Walking in circles, falling to the left, Left eye going "Squirly", drooping facial expressions, left arm spazams, listing to the left and more.
She also has Atonic-Clonic (im not sure on the spelling or if the name is right) siezures where she would drop un-concious. They ranged from 5 seconds to 3 minutes. They would also cause her to pee randomly.
She has classic abcance siezures including drooling, and eyes fluttering/rolling up and to the left.
She also has Clonic-tonic (Grand mal's?) that usually last 2-3 miuntes.
Here is the kicker. She is greatly effected by her discharges and the subsiquent siezures. The worst eeg they recorded 156 discharges/siezures in one hour. That included over 50 siezures proper that lasted 3 second to 2 minutes.
We have gone throught a wide specturm of medications all offered some control. But we have never had all 4 types of siezures controled at the same time. It has now coming up on 3 years since the accident. It is unclear wether it's the cause or not.
We are awaiting the response to the testing for Ring chromosome 27 (i think that's what it's called) ---the genetic testing.
They have been unable to locate any brain damage by mri or ct.
There you have it. I think the most important thing here is the effect that it has had on our family. I will get into that shortly. For now im out of time.
